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Archive for 2020

Life with Trisomy 21: Catalena’s Story

By Priscilla, Cat’s Mom When people tell you that you don’t know love until you’re a parent, it’s true. When Catalena first looked up at me with her little baby eyes, it was like time stopped. The world was still. […]

Life with Trisomy 18: Dawson’s Story

By Renae, Dawson’s Mom Dawson is an amazing little boy! He brings such joy to our lives. He has the most perfect little smile. Although he is non-verbal, he communicates with his eyes and hands to make us feel so […]

Life with Trisomy 9 Mosaic: Carolyn’s Story

Soon after Carolyn was born, she received a diagnosis of Trisomy 9 Mosaic. This rare chromosomal condition is characterized by an extra ninth chromosome in some of the body’s cells. While Carolyn’s parents quickly learned the technical definition of her […]

Life with Trisomy 21: Ally’s Story

By Margaret, Ally’s Mom As we approach World Down Syndrome Day on March 21st, we were asked to share a little about our daughter Alison (Ally). There is so much to write about, but I think our focus should be […]

Living Life to the Fullest with a Feeding Tube

“I have spinal muscular atrophy type two,” Cory shares. “Because of my condition, I’ve had to learn to adapt to every type of normal situation, including eating.” Spinal muscular atrophy is a genetic condition that causes progressive muscle weakness and […]

The Beauty of Melia’s Feeding Tube

“There are different ways to feed your baby, and they are all beautiful,” Heather says. “I hope more people learn that during Feeding Tube Awareness Week.” When her daughter Melia Grace was born last summer, Heather wasn’t familiar with all […]

Iyanna’s Amazing Nurses

By Shadonna, Iyanna’s mom My daughter Iyanna was born in December 2017 with a heart condition call pulmonary atresia with intact ventricular septum. Just a few hours after she was born, Iyanna coded, and they had to shock her heart. […]

Home for the Holidays: Xavier

Our patient Xavier was born in December of 2018 with multiple challenging diagnoses. During the first year of his life, Xavier overcame many obstacles, including pneumonia, intrapulmonary hemorrhage, infections, and almost every diagnostic test and procedure you could imagine. It […]

A Nurse’s Calling: Rich Ung

Today we’d like to introduce you to a very special Aveanna team member – Nurse Rich! Rich has been part of the Aveanna family for just a few months, but in that short time he has made an incredible impact. […]