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Category: Pediatric Patient Stories

Life with Trisomy 9 Mosaic: Carolyn's Story
Published March 9, 2020
Soon after Carolyn was born, she received a diagnosis of Trisomy 9 Mosaic. This rare chromosomal condition is characterized by an extra ninth chromosome in some of the body’s cells. While Carolyn’s parents quickly learned the technical definition of…
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Living Life to the Fullest with a Feeding Tube
Published Feb. 14, 2020
“I have spinal muscular atrophy type two,” Cory shares. “Because of my condition, I’ve had to learn to adapt to every type of normal situation, including eating.” Spinal muscular atrophy is a genetic condition that causes progressive muscle weakness…
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Home for the Holidays: Xavier
Published Jan. 10, 2020
Our patient Xavier was born in December of 2018 with multiple challenging diagnoses. During the first year of his life, Xavier overcame many obstacles, including pneumonia, intrapulmonary hemorrhage, infections, and almost every diagnostic test and …
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Home for the Holidays: Saylor
Published Dec. 13, 2019
Our patient Saylor is a precious little girl with lots of personality. She loves to play and laugh - especially with her very special nurse, Vadim. Saylor and Vadim are the best of friends and love doing anything and everything together. During a re…
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Celebrating Zayden's Progress
Published July 19, 2019
Zayden is a two-year-old toddler who started attending one of Aveanna’s Pediatric Day Health Care centers when he was an infant. Zayden had meconium aspiration at birth, which caused him to have severe reactive airway disease. Zayden's early days we…
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