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Parent to Parent

Gerald’s Story: A Tribute to Fathers of Medically Fragile Children

Gerald became a father through adoption over twenty years ago and has devoted his life to his four children ever since. His son Daquan and daughter, Ivy, both live with cerebral palsy and significant support needs. But no matter how […]

Celebrating Nurse Julianna

By Jessica, Chloe’s Mom Before we had in-home nursing care, I thought we were doing fine. I was Mom, after all, and who better to care for my child than me? I could not have been more wrong. When I […]

Seeing Through His Eyes: The Beauty of Medically Fragile Motherhood

For Maria, motherhood hasn’t always been easy. But it is always beautiful. Her older son, Darian, was born premature and lives with cerebral palsy. Maria had to go home from the hospital without Darian soon after he was born. She […]

Rémi’s Occupational Therapy Journey: With Us Every Step of the Way

By Alecia, Rémi’s Mom Rémi was born a twin on January 23rd, 2017 weighing 5 pounds, 15 ounces. She was diagnosed in utero at 23 weeks with Hypoplastic Left Heart Syndrome (HLHS). She underwent her first open heart surgery at […]

Javier’s Occupational Therapy Journey: Building a Bridge to My Son

By Denny, Javier’s Mom In April of 2017, our son, Javier, was diagnosed with Autism and required substantial support. Unsure and confused about what exactly this meant, I felt a big piece of my heart go numb. As parents, we […]

Life with Trisomy 21: Catalena’s Story

By Priscilla, Cat’s Mom When people tell you that you don’t know love until you’re a parent, it’s true. When Catalena first looked up at me with her little baby eyes, it was like time stopped. The world was still. […]

Life with Trisomy 18: Dawson’s Story

By Renae, Dawson’s Mom Dawson is an amazing little boy! He brings such joy to our lives. He has the most perfect little smile. Although he is non-verbal, he communicates with his eyes and hands to make us feel so […]

Life with Trisomy 21: Ally’s Story

By Margaret, Ally’s Mom As we approach World Down Syndrome Day on March 21st, we were asked to share a little about our daughter Alison (Ally). There is so much to write about, but I think our focus should be […]

The Beauty of Melia’s Feeding Tube

“There are different ways to feed your baby, and they are all beautiful,” Heather says. “I hope more people learn that during Feeding Tube Awareness Week.” When her daughter Melia Grace was born last summer, Heather wasn’t familiar with all […]

Iyanna’s Amazing Nurses

By Shadonna, Iyanna’s mom My daughter Iyanna was born in December 2017 with a heart condition call pulmonary atresia with intact ventricular septum. Just a few hours after she was born, Iyanna coded, and they had to shock her heart. […]