The Blog

When Arianna was about ten months old, she was diagnosed with Spinal Muscular Atrophy. Doctors told Arianna’s parents that she likely wouldn’t live past two years old. The news was devastating, to say the least. But Arianna’s parents were determine…

Rubi’s parents heard the word “never” a lot after their daughter was born. Rubi would never walk. Rubi would never talk. And some days it felt like Rubi would never come home. When she finally could come home, her doctors said Rubi would need 24/7 …

Becoming the parent of a medically fragile child can be overwhelming. But having the right people by your side makes all the difference. That’s what Rubi’s parents found when their daughter was born in 2018. Rubi faced significant challenges from …

A note from Anastassia's mom: Anastassia (Stassi) was born at 23 weeks’ gestation, weighing 1 pound 4 ounces. At 2 months old, she contracted GBS meningitis. She spent 284 days in the NICU and has had a total of 23 surgeries to date. Fast forward …