Helping Margo Find Her Voice
Published May 31, 2019
When Margo was diagnosed with profound hearing loss shortly after birth, her parents began researching options for early language development for children who have hearing loss. They read a lot of books, researched articles online, and spoke to youn…
Presley's Speech Therapy Journey
Published May 24, 2019
Presley started therapy services with Aveanna in December of 2017. He was a bright, happy, and intelligent three-year-old. But Presley also had a severe fluency disorder and was beginning to show anxiety about the way he spoke. When Aveanna Speech-L…
More Than a Nurse
Published May 17, 2019
By Rachel, Ella's mom Ella has Nemaline Rod Myopathy and an immunoglobulin deficiency. Her skeletal muscles are profoundly weak, which makes endurance difficult and breathing on her own for long periods exhausting. Ella was trached in 2016 after get…
Shannon’s Story: A Mother’s Day Tribute to Mothers of Medically Fragile Children
Published May 12, 2019
By Shannon, Penny's mom When I was pregnant, I daydreamed about what it would be like to hold my baby. I imagined taking her for a walk in the park, but all of that changed when Penny was born with Pierre Robin Syndrome. I realized pretty quickly th…
Paris, First and Foremost
Published March 29, 2019
“Paris has cerebral palsy. But she is so much more than her condition.” When Paris was diagnosed with CP at birth, Krystal knew the disorder would impact her daughter in many ways. But she determined early on that she wouldn’t let it define Paris. …
Changed for the Better
Published March 22, 2019
By Martha, Justin's mom I wish more people understood that having a son with Down syndrome did change my family’s life for sure, but that Justin changed us for the better. Justin has taught us to value life more and appreciate what we are given. We …
Myra's Therapy Team
Published March 15, 2019
By Delisa Derbyshire, PTA  Meet Myra. She is a happy, unstoppable three-year-old with Rett’s syndrome. Perhaps the most striking thing about Myra is her brightly attentive, beautiful eyes. Although she cannot talk, Myra communicates with her eyes in…
The Joys and Fears of Parenting a Medically Fragile Child
Published Jan. 25, 2019
By Kizzie’s mom, Amanda I still remember the day that I found out I was pregnant with our little Kizzie Jane. I was overwhelmed with joy and fear. I was so excited to be pregnant again after a miscarriage. But I was scared as well because of the iss…
Preparing Your Child for the Future
Published Jan. 11, 2019
By Beth Rubio, Chief Clinical Officer How do I prepare my child with special needs emotionally for the future? Develop family bonds A child with special needs will go through the same emotional stages as other children. It is important to develop s…
Facing Challenges Together
Published Dec. 21, 2018
“We all know that there are no days off when you’re a parent,” Jeffrey says. “However, many people don’t understand that when you’re a parent of a special needs child, there aren’t even any moments off. When Gabriel goes to sleep, we can’t really re…
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