Increasing Saylor's Independence
Published July 5, 2019
Saylor is a 20-month-old little girl with a rare mitochondrial disease and Fanconi Syndrome. Because of these conditions, Saylor depends on a central line with TPN for nutrition and, until recently, she required frequent hospitalizations. During the…
Finding the Perfect Therapy Team for My Son
Published June 28, 2019
By Maira, Erik’s mom Although my son, Erik, has always been a sweet boy, when he turned three his behavior began to change. I noticed a delay in his speech when he turned three years old, which was a bit odd to us since my older daughter had been ve…
The Benefits of Working in Home Care
Published June 21, 2019
By Beth Rubio, Chief Clinical Officer Working in the home care setting is very different than working in a facility or hospital. If you've never worked as a caregiver in the home before, you might be a little hesitant or even apprehensive about the …
The Beauty of a Father's Love
Published June 16, 2019
When Doug and Tina’s fourth son, Anthony, was born with muscular dystrophy, they faced new challenges as parents. “We didn’t know what to do,” Tina recalls. “We didn’t know what kind of life he could have. We had no idea how to parent a child who de…
Helping Margo Find Her Voice
Published May 31, 2019
When Margo was diagnosed with profound hearing loss shortly after birth, her parents began researching options for early language development for children who have hearing loss. They read a lot of books, researched articles online, and spoke to youn…
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