The Joys and Fears of Parenting a Medically Fragile Child
Published Jan. 25, 2019
By Kizzie’s mom, Amanda I still remember the day that I found out I was pregnant with our little Kizzie Jane. I was overwhelmed with joy and fear. I was so excited to be pregnant again after a miscarriage. But I was scared as well because of the iss…
Preparing Your Child for the Future
Published Jan. 11, 2019
By Beth Rubio, Chief Clinical Officer How do I prepare my child with special needs emotionally for the future? Develop family bonds A child with special needs will go through the same emotional stages as other children. It is important to develop s…
Celebrating Nathaniel's "Inchstones"
Published Dec. 28, 2018
By Nathaniel's mom, Alysha "To have joy in your heart, one must know how to appreciate the small things in life."  - Unknown Our son Nathaniel was born with a rare SCN2a genetic mutation. Because of this mutation, he is nonverbal, non-ambulatory whe…
Facing Challenges Together
Published Dec. 21, 2018
“We all know that there are no days off when you’re a parent,” Jeffrey says. “However, many people don’t understand that when you’re a parent of a special needs child, there aren’t even any moments off. When Gabriel goes to sleep, we can’t really re…
Keeping Holiday Gifts Safe for Your Child with Special Needs
Published Dec. 14, 2018
By Beth Rubio, Chief Clinical Officer What should I be concerned about in relation to holiday gifts and toys for my special needs child? All children, including those with special needs and disabilities, love new, cool, fun things - especially when…
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