More Than a Nurse
Published May 17, 2019
By Rachel, Ella's mom Ella has Nemaline Rod Myopathy and an immunoglobulin deficiency. Her skeletal muscles are profoundly weak, which makes endurance difficult and breathing on her own for long periods exhausting. Ella was trached in 2016 after get…
Shannon’s Story: A Mother’s Day Tribute to Mothers of Medically Fragile Children
Published May 12, 2019
By Shannon, Penny's mom When I was pregnant, I daydreamed about what it would be like to hold my baby. I imagined taking her for a walk in the park, but all of that changed when Penny was born with Pierre Robin Syndrome. I realized pretty quickly th…
Paris, First and Foremost
Published March 29, 2019
“Paris has cerebral palsy. But she is so much more than her condition.” When Paris was diagnosed with CP at birth, Krystal knew the disorder would impact her daughter in many ways. But she determined early on that she wouldn’t let it define Paris. …
Changed for the Better
Published March 22, 2019
By Martha, Justin's mom I wish more people understood that having a son with Down syndrome did change my family’s life for sure, but that Justin changed us for the better. Justin has taught us to value life more and appreciate what we are given. We …
Myra's Therapy Team
Published March 15, 2019
By Delisa Derbyshire, PTA  Meet Myra. She is a happy, unstoppable three-year-old with Rett’s syndrome. Perhaps the most striking thing about Myra is her brightly attentive, beautiful eyes. Although she cannot talk, Myra communicates with her eyes in…
Understanding Dysphagia
Published March 8, 2019
Dysphagia is a swallowing disorder and can be found in children who have neurological disorders. It is the medical term for the symptom of difficulty in swallowing. Although dysphagia is a symptom, the term is sometimes used as a condition in its o…
Excelling with Enteral Nutrition
Published Feb. 22, 2019
Meet Mason! Turning three years old this February, Mason has been such a superstar since the day he was born. He and his family are happy to share his story to celebrate Mason’s health progress in addition to Feeding Tube Awareness Week. Mason is di…
Celebrating AJ's Amazing Progress
Published Feb. 15, 2019
AJ is the strongest seven-year-old we know, and after you hear his story, we know you’ll agree. This patient superstar was born at 29 weeks gestation and has already endured 9 life-improving surgeries, with his first major surgery at just two days o…
Mighty Micah's Feeding Tube
Published Feb. 8, 2019
Micah is a precious patient superstar and he’s only six months old. Micah joined the Aveanna Healthcare family in October of 2018 after being diagnosed with failure to thrive. Micah currently receives enteral nutrition, private duty nursing, physica…
Noah's Feeding Tube Journey
Published Feb. 1, 2019
Two and a half and full of smiles, patient superstar Noah steals your heart the moment you lay eyes on him. His family believes he’s the happiest kid on earth, and we’re excited to share his story in honor of Feeding Tube Awareness Week. Noah joined…
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