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Category: Parent to Parent

Rémi's Occupational Therapy Journey: With Us Every Step of the Way
Published April 17, 2020
By Alecia, Rémi's Mom Rémi was born a twin on January 23rd, 2017 weighing 5 pounds, 15 ounces. She was diagnosed in utero at 23 weeks with Hypoplastic Left Heart Syndrome (HLHS). She underwent her first open heart surgery at just ten days old, fo…
Javier's Occupational Therapy Journey: Building a Bridge to My Son
Published April 10, 2020
By Denny, Javier's Mom In April of 2017, our son, Javier, was diagnosed with Autism and required substantial support. Unsure and confused about what exactly this meant, I felt a big piece of my heart go numb. As parents, we try to study and learn ev…
Life with Trisomy 21: Catalena's Story
Published March 20, 2020
By Priscilla, Cat's Mom When people tell you that you don't know love until you're a parent, it's true. When Catalena first looked up at me with her little baby eyes, it was like time stopped. The world was still. I knew she was going to make my lif…
Life with Trisomy 18: Dawson's Story
Published March 13, 2020
By Renae, Dawson's Mom Dawson is an amazing little boy! He brings such joy to our lives. He has the most perfect little smile. Although he is non-verbal, he communicates with his eyes and hands to make us feel so loved. Whether he is hanging out in …
Life with Trisomy 21: Ally's Story
Published March 6, 2020
By Margaret, Ally's Mom As we approach World Down Syndrome Day on March 21st, we were asked to share a little about our daughter Alison (Ally). There is so much to write about, but I think our focus should be about how such a small little girl has m…