The Blog

By Martha, Justin's mom I wish more people understood that having a son with Down syndrome did change my family’s life for sure, but that Justin changed us for the better. Justin has taught us to value life more and appreciate what we are given. We …

By Kizzie’s mom, Amanda I still remember the day that I found out I was pregnant with our little Kizzie Jane. I was overwhelmed with joy and fear. I was so excited to be pregnant again after a miscarriage. But I was scared as well because of the iss…

By Nathaniel's mom, Alysha "To have joy in your heart, one must know how to appreciate the small things in life."  - Unknown Our son Nathaniel was born with a rare SCN2a genetic mutation. Because of this mutation, he is nonverbal, non-ambulatory whe…

“We all know that there are no days off when you’re a parent,” Jeffrey says. “However, many people don’t understand that when you’re a parent of a special needs child, there aren’t even any moments off. When Gabriel goes to sleep, we can’t really re…

Ten years ago, Oscar sat with his wife in a hospital room, his six-month-old son in his arms, and learned about the disease that had changed their lives forever. Spinal muscular atrophy. As Oscar listened to the doctor describe the progressive muscl…

“My favorite memory with Reagan is sitting on the beach in Cape Cod with her last year,” Ron recalls. “Reagan was in an adaptive beach chair that my wife bought for her. We were just sitting on the beach. She was watching the waves and the wind and …

When Sherry gave birth to her third daughter, Dominique, the nurses wouldn’t let her see her baby for what seemed like forever. She overheard doctors talking about trachs and vents and surgeries. She didn’t know what it all meant. In a moment that w…

“Any mom I meet, I encourage her to be selfish.” This statement comes from Marisa, an Aveanna mom whose daughter, Brylee, was born with nemaline myopathy. After Brylee’s birth, Marisa dedicated her entire life to her daughter’s care. For the first …

Aveanna mom Natosha has led her family in focusing on the positives in life, even when everything seems overwhelmingly negative. The focal point of the Voss kitchen is Natosha’s dream board, which is filled with her future hopes and present inspirat…