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Category: Parent to Parent

Life with Trisomy 21: Ally's Story
Published March 6, 2020
By Margaret, Ally's Mom As we approach World Down Syndrome Day on March 21st, we were asked to share a little about our daughter Alison (Ally). There is so much to write about, but I think our focus should be about how such a small little girl has m…
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The Beauty of Melia's Feeding Tube
Published Feb. 7, 2020
“There are different ways to feed your baby, and they are all beautiful,” Heather says. “I hope more people learn that during Feeding Tube Awareness Week.” When her daughter Melia Grace was born last summer, Heather wasn’t familiar with all the dif…
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Iyanna's Amazing Nurses
Published Jan. 17, 2020
By Shadonna, Iyanna's mom My daughter Iyanna was born in December 2017 with a heart condition call pulmonary atresia with intact ventricular septum. Just a few hours after she was born, Iyanna coded, and they had to shock her heart. That’s when the …
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Jeremiah Takes His First Steps
Published Nov. 29, 2019
By Kim, Jeremiah's mom My son Jeremiah has grown not only physically but emotionally as well with physical therapy. When Jeremiah was born, we already knew he would have a harder time with simple things such as eating, talking, and walking. Even cra…
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Maksim's Amazing Costumes
Published July 26, 2019
The Aveanna team was so excited to see our patient Maksim at the Children’s Hospital Los Angeles annual Walk and Play L.A. event last month. Maksim didn't just attend the event – he showed up in style with a new costume! Maksim uses his costume crea…
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