The Blog

By Margaret, Ally's Mom As we approach World Down Syndrome Day on March 21st, we were asked to share a little about our daughter Alison (Ally). There is so much to write about, but I think our focus should be about how such a small little girl has m…

“There are different ways to feed your baby, and they are all beautiful,” Heather says. “I hope more people learn that during Feeding Tube Awareness Week.” When her daughter Melia Grace was born last summer, Heather wasn’t familiar with all the dif…

By Kim, Jeremiah's mom My son Jeremiah has grown not only physically but emotionally as well with physical therapy. When Jeremiah was born, we already knew he would have a harder time with simple things such as eating, talking, and walking. Even cra…

The Aveanna team was so excited to see our patient Maksim at the Children’s Hospital Los Angeles annual Walk and Play L.A. event last month. Maksim didn't just attend the event – he showed up in style with a new costume! Maksim uses his costume crea…

Saylor is a 20-month-old little girl with a rare mitochondrial disease and Fanconi Syndrome. Because of these conditions, Saylor depends on a central line with TPN for nutrition and, until recently, she required frequent hospitalizations. During the…

By Maira, Erik’s mom Although my son, Erik, has always been a sweet boy, when he turned three his behavior began to change. I noticed a delay in his speech when he turned three years old, which was a bit odd to us since my older daughter had been ve…

When Doug and Tina’s fourth son, Anthony, was born with muscular dystrophy, they faced new challenges as parents. “We didn’t know what to do,” Tina recalls. “We didn’t know what kind of life he could have. We had no idea how to parent a child who de…

By Rachel, Ella's mom Ella has Nemaline Rod Myopathy and an immunoglobulin deficiency. Her skeletal muscles are profoundly weak, which makes endurance difficult and breathing on her own for long periods exhausting. Ella was trached in 2016 after get…

By Shannon, Penny's mom When I was pregnant, I daydreamed about what it would be like to hold my baby. I imagined taking her for a walk in the park, but all of that changed when Penny was born with Pierre Robin Syndrome. I realized pretty quickly th…

“Paris has cerebral palsy. But she is so much more than her condition.” When Paris was diagnosed with CP at birth, Krystal knew the disorder would impact her daughter in many ways. But she determined early on that she wouldn’t let it define Paris. “…