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Category: Parent to Parent

Raising an Orchid
Published Aug. 24, 2018
Ten years ago, Oscar sat with his wife in a hospital room, his six-month-old son in his arms, and learned about the disease that had changed their lives forever. Spinal muscular atrophy. As Oscar listened to the doctor describe the progressive muscl…
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Reagan and Ron
Published June 17, 2018
“My favorite memory with Reagan is sitting on the beach in Cape Cod with her last year,” Ron recalls. “Reagan was in an adaptive beach chair that my wife bought for her. We were just sitting on the beach. She was watching the waves and the wind and …
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My One in a Million
Published May 13, 2018
When Sherry gave birth to her third daughter, Dominique, the nurses wouldn’t let her see her baby for what seemed like forever. She overheard doctors talking about trachs and vents and surgeries. She didn’t know what it all meant. In a moment that w…
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A Mom’s Reflections on Caregiver Burnout
Published Jan. 17, 2018
“Any mom I meet, I encourage her to be selfish.” This statement comes from Marisa, an Aveanna mom whose daughter, Brylee, was born with nemaline myopathy. After Brylee’s birth, Marisa dedicated her entire life to her daughter’s care. For the first …
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The Dream Board
Published Oct. 20, 2017
Aveanna mom Natosha has led her family in focusing on the positives in life, even when everything seems overwhelmingly negative. The focal point of the Voss kitchen is Natosha’s dream board, which is filled with her future hopes and present inspirat…
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