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Category: Parent to Parent

Finding Support as Parents of a Medically Fragile Child
Published Aug. 11, 2021
Becoming the parent of a medically fragile child can be overwhelming. But having the right people by your side makes all the difference. That’s what Rubi’s parents found when their daughter was born in 2018. Rubi faced significant challenges from …
Working as a Team with Your Homecare Nurses
Published July 28, 2021
Cambria lives with her grandmother LaMay and requires extensive care due to a condition called acute flaccid myelitis. Over the four and a half years that Cami has had nursing care, LaMay has learned a lot about working as a team with her homecare …
Celebrating the Adventures of Fatherhood
Published June 20, 2021
Jeff and Brian love being fathers and are deeply passionate about the family they have built together with their children, Carter and Gabriana. Like any parenting journey, theirs has its challenges. But these dads enjoy every step along the way. C…
A Medically Fragile Mother's Motivation
Published May 9, 2021
Moms are heroes. They do the impossible, work tirelessly, and take care of everyone else along the way. How do they do it? Aveanna mom Nicole says it’s all about having the right motivation. Nicole’s daughter, Keisha, was born with club feet and a…
Gerald's Story: A Tribute to Fathers of Medically Fragile Children
Published June 21, 2020
Gerald became a father through adoption over twenty years ago and has devoted his life to his four children ever since. His son Daquan and daughter, Ivy, both live with cerebral palsy and significant support needs. But no matter how much love and en…
Seeing Through His Eyes: The Beauty of Medically Fragile Motherhood
Published May 10, 2020
For Maria, motherhood hasn’t always been easy. But it is always beautiful. Her older son, Darian, was born premature and lives with cerebral palsy. Maria had to go home from the hospital without Darian soon after he was born. She then watched for mo…
Rémi's Occupational Therapy Journey: With Us Every Step of the Way
Published April 17, 2020
By Alecia, Rémi's Mom Rémi was born a twin on January 23rd, 2017 weighing 5 pounds, 15 ounces. She was diagnosed in utero at 23 weeks with Hypoplastic Left Heart Syndrome (HLHS). She underwent her first open heart surgery at just ten days old, fo…
Javier's Occupational Therapy Journey: Building a Bridge to My Son
Published April 10, 2020
By Denny, Javier's Mom In April of 2017, our son, Javier, was diagnosed with Autism and required substantial support. Unsure and confused about what exactly this meant, I felt a big piece of my heart go numb. As parents, we try to study and learn ev…
Life with Trisomy 21: Catalena's Story
Published March 20, 2020
By Priscilla, Cat's Mom When people tell you that you don't know love until you're a parent, it's true. When Catalena first looked up at me with her little baby eyes, it was like time stopped. The world was still. I knew she was going to make my lif…
Life with Trisomy 18: Dawson's Story
Published March 13, 2020
Dawson is an amazing little boy! He brings such joy to our lives. He has the most perfect little smile. Although he is non-verbal, he communicates with his eyes and hands to make us feel so loved. Whether he is hanging out in his bed or his wheelch…