Skip to Page Content (will bypass menus and search fields)

Category: Parent to Parent

Paris, First and Foremost
Published March 29, 2019
“Paris has cerebral palsy. But she is so much more than her condition.” When Paris was diagnosed with CP at birth, Krystal knew the disorder would impact her daughter in many ways. But she determined early on that she wouldn’t let it define Paris. “…
Read More
Changed for the Better
Published March 22, 2019
By Martha, Justin's mom I wish more people understood that having a son with Down syndrome did change my family’s life for sure, but that Justin changed us for the better. Justin has taught us to value life more and appreciate what we are given. We …
Read More
The Joys and Fears of Parenting a Medically Fragile Child
Published Jan. 25, 2019
By Kizzie’s mom, Amanda I still remember the day that I found out I was pregnant with our little Kizzie Jane. I was overwhelmed with joy and fear. I was so excited to be pregnant again after a miscarriage. But I was scared as well because of the iss…
Read More
Celebrating Nathaniel's "Inchstones"
Published Dec. 28, 2018
By Nathaniel's mom, Alysha "To have joy in your heart, one must know how to appreciate the small things in life."  - Unknown Our son Nathaniel was born with a rare SCN2a genetic mutation. Because of this mutation, he is nonverbal, non-ambulatory whe…
Read More
Facing Challenges Together
Published Dec. 21, 2018
“We all know that there are no days off when you’re a parent,” Jeffrey says. “However, many people don’t understand that when you’re a parent of a special needs child, there aren’t even any moments off. When Gabriel goes to sleep, we can’t really re…
Read More