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The Joys and Fears of Parenting a Medically Fragile Child
Published Jan. 25, 2019
By Kizzie’s mom, Amanda I still remember the day that I found out I was pregnant with our little Kizzie Jane. I was overwhelmed with joy and fear. I was so excited to be pregnant again after a miscarriage. But I was scared as well because of the iss…
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Preparing Your Child for the Future
Published Jan. 11, 2019
By Beth Rubio, Chief Clinical Officer How do I prepare my child with special needs emotionally for the future? Develop family bonds A child with special needs will go through the same emotional stages as other children. It is important to develop s…
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Celebrating Nathaniel's "Inchstones"
Published Dec. 28, 2018
By Nathaniel's mom, Alysha "To have joy in your heart, one must know how to appreciate the small things in life."  - Unknown Our son Nathaniel was born with a rare SCN2a genetic mutation. Because of this mutation, he is nonverbal, non-ambulatory whe…
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Facing Challenges Together
Published Dec. 21, 2018
“We all know that there are no days off when you’re a parent,” Jeffrey says. “However, many people don’t understand that when you’re a parent of a special needs child, there aren’t even any moments off. When Gabriel goes to sleep, we can’t really re…
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Keeping Holiday Gifts Safe for Your Child with Special Needs
Published Dec. 14, 2018
By Beth Rubio, Chief Clinical Officer What should I be concerned about in relation to holiday gifts and toys for my special needs child? All children, including those with special needs and disabilities, love new, cool, fun things - especially when…
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